Dwarfism Awareness Month 2018

If you don’t already know, October is dwarfism awareness month & if you weren’t aware, I have dwarfism – obviously. I know it’s hard to tell *sarcasm*

So I thought I’d participate this month and share a bit here and there about my thoughts, feelings, and opinions about it all – so let’s go ~

I was born with the most common form of dwarfism, achondroplasia and I’m going to be real here and say that having dwarfism IS NOT JUST BEING SHORT 🤜🎤💥 *mic drop* It’s a medical condition with its own complications and risks – head, neck, spine, airways/nasal passage, ears, etc.

If I was ‘just short’ I’d be pretty damn pleased. Yes, I had limb lengthening (in case you haven’t heard that enough) but I’m still a small human and will use the excuse ‘yeah, I’m 16’ as long as I can just so I can pay a cheaper price or whatever BUT I’ll also be followed by doctors the rest of my life as well as any children I may have in the future.

I have a 50% chance of passing on the gene if I have a child with someone of ‘average’ stature and tbh that scares me. It’s even scarier if I were to have a child with someone who also has achondroplasia/carries the gene because the risk would be higher and there’d be a chance the baby is born double dominant.

“Do you want a child with achondroplasia?” is a question that I really hate being asked.

  1. It makes feel like I’m seen as a separate species of some sort
  2. Some women (& men) don’t like being asked about having children
  3. If I have a child that’s anything like me I guarantee their sass would be far more than I could handle
via @chancrews

View this post on Instagram

if you don’t already know, October is #dwarfismawarenessmonth & if you weren’t aware, I have dwarfism – obviously. I know it's hard to tell *sarcasm* . so I thought I'd participate this month and share a bit here and there about my thoughts, feelings, and opinions about it all – so let's go ~ I was born with the most common form of dwarfism, #achondroplasia and I’m going to be real here and say that having #dwarfism IS NOT JUST BEING SHORT 🤜🎤💥 *mic drop* It’s a #medical condition with its own complications and risks – head, neck, spine, airways/nasal passage, ears, etc. . If I was ‘just short’ I’d be pretty damn pleased. Yes, I had #limblengthening (incase you haven’t heard that enough) but I’m still a small human and will use the excuse ‘yeah, I’m 16’ as long as I can just so I can pay a cheaper price or whatever BUT I’ll also be followed by doctors the rest of my life as well as any children I may have in the future . I have a 50% chance of passing on the #gene if I have a child with someone of ‘average’ stature and #tbh that scares me. It’s even more scary if I were to have a child with someone who also has achondroplasia/carries the gene because the risk would be higher and there’d be a chance the baby is born double dominant . “Do you want a child with achondroplasia?” is a question that I really hate being asked. 1. It makes feel like I’m seen as a separate species of some sort 2. Some women (& men) don’t like being asked about having children 3. If I have a child that’s anything like me I guarantee their sass would be far more than I could handle . That’s it for this week ☺️ If there’s any questions feel free to ask 💚 #chanstagram #instachan #october #thursday #tbt #awareness #diagnosis #genetic #skeletaldysplasia #patientstory #globalgenes #themoreyouknow #knowledgeispower #ctfob #wmade #herstory #iamthatgirl

A post shared by Chandler Crews (@chancrews) on

Leave a Reply

%d bloggers like this: