3rd Annual Achondroplasia Research Conference
Last weekend, The Chandler Project hosted its 3rd Annual Achondroplasia Research Conference. With a sigh of relief, I can say, it was a success with over 100 attendees from 21 countries! Although it was offered worldwide, thanks to technology, it…
Born Small
I had the honor of being part of this project by the Special Broadcasting Service (SBS), Australia’s most diverse broadcaster, that focuses on the trial for vosoritide, a therapeutic treatment that will soon be available to those affected by achondroplasia….
Never Change, but Never Stay the Same
It’s been 227 days since I celebrated my 10-year leg-iversary and since I quoted Taylor Swift then, I may as well keep the theme going and quote her today – also, I’m stoked af for the drop of Fearless (Taylor’s Version) tonight…
Rare Disease Day 2021
It’s Rare Disease Day! Today, I’m wearing stripes to acknowledge those living with a rare disease. A disease is a “disorder of structure or function in a human…especially one that produces specific signs or symptoms.” Referring to achondroplasia as a “disease” is upsetting to some who…
What Matters to Me
It’s been a year since Love What Matters reached out and asked to share my story. My thoughts and words from this passage are still the same. However, looking back, there’s more I wish I would’ve included. I talk a…
