I have achondroplasia and am one of many living with this condition which is caused by a mutation in the FGFR3 gene. On my platform, I represent myself. I choose how I identify my diagnosis, how I treat my diagnosis. And I choose what my diagnosis means to me and that’s ...
it’s supposed to be fun turning ’21
Remember last year when we turned '21? It was supposed to be fun, right? At least, that's what Taylor thought when she turned 21 *forever internally screaming, "screw you, Jake Gyllenhaal!"* 😫 Don't get me wrong, 2021 was a fun year, with caution...which is a state of matter I think we're going ...
hope for achondroplasia 🕊️
To cure vs. To treat. • To cure is to complete the restoration (get rid of) of health.• To treat is IMPROVE health, but may not include the complete elimination of a disease. What's coming up for achondroplasia isn't a cure nor is it genocide. It's hope. Parents and caregivers are making ...
