Achondroplasia

It’s been 227 days since I celebrated my 10-year leg-iversary and since I quoted Taylor Swift then, I may as well keep the theme going and quote her today – also, I’m…

Achondroplasia

It’s Rare Disease Day! Today, I’m wearing stripes to acknowledge those living with a rare disease. A disease is a “disorder of structure or function in a human…especially one that produces specific signs or…

Achondroplasia

It’s been a year since Love What Matters reached out and asked to share my story. My thoughts and words from this passage are still the same. However, looking back,…

Media

Achondroplasia

Did you know today is Growth Awareness day? This year, The Chandler Project partnered with Ascendis Pharma to invite patients and families of children with achondroplasia to share insights, experiences, and knowledge…

Achondroplasia

Register for the Virtual Achondroplasia Research Conference on Saturday, September 5 at 9 a.m. Eastern Standard Time. The conference agenda is filled with information and resources on the latest research…

Self

Today is #RareDiseaseDay – a day for advocating, not really celebrating IMO. Let’s celebrate our differences by who we are as individuals, not by our diagnosis. Achondroplasia is caused by…