Advocacy

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Rare Disease Day – 2022

I have achondroplasia and am one of many living with this condition which is caused by a mutation in the FGFR3 gene. On my platform, I represent myself. I choose how I…
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Rare Disease Day 2021

It’s Rare Disease Day! Today, I’m wearing stripes to acknowledge those living with a rare disease. A disease is a “disorder of structure or function in a human…especially one that produces specific…
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What Matters to Me

It’s been a year since Love What Matters reached out and asked to share my story. My thoughts and words from this passage are still the same. However,…