Fundacíon ALPE Acondroplasia 2018

If you were keeping up with me on social media last week then you probably know that I was in Spain for the sixth International Congress on Achondroplasia and other Bone Dysplasias. This three-day event is put on every four years by Fundacíon ALPE Acondroplasia. ALPE is such a wonderful organization that provides information, gives support, sponsors medical advice and creates bonds for families and children with achondroplasia and other forms of rare bone dysplasias. I had the honor of meeting Estefánia and Susana earlier this year while in Maryland for the Joint Pediatric Advisory Committee and Endocrinologic and Metabolic Drugs Advisory Committee Open Public Hearing. This was my first time attending the ALPE Congress and I can say first hand that in all the ways it’s similar to a Little People of America National Conference or Regional it’s also very different. Like at LPA, they had world-renowned medical professionals and dwarfism specialists […]

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#SundayBunday Week 1

Welcome to #SundayBunday !!! Sunday is usually the day where I stress eat, binge on tv, and think of ways I can avoid the upcoming Monday – more like Ughday. Since it is summer and Sundays are a little less scary right now I thought I would make it a priority for myself to write more for myself and also give my readers a recap of my week. I’m calling it ‘Sunday Bunday’ because Sundays are the day where my hair is up in a bun. So enough with the introduction… Here’s what went on this week >>>

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LPA Nationals 2017

July already?!?! 🙈 Last week was the Little People of America 60th National Conference in Denver! 💎 fun fact: the first LPA conference I ever attended was also in Denver in ’95! 💚 This year I was able to see some familiar faces — and famous ones too

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