Fundacíon ALPE Acondroplasia 2018

If you were keeping up with me on social media last week then you probably know that I was in Spain for the sixth International Congress on Achondroplasia and other Bone Dysplasias. This three-day event is put on every four years by Fundacíon ALPE Acondroplasia. ALPE is such a wonderful organization that provides information, gives support, sponsors medical advice and creates bonds for families and children with achondroplasia and other forms of rare bone dysplasias. I had the honor of meeting Estefánia and Susana earlier this year while in Maryland for the Joint Pediatric Advisory Committee and Endocrinologic and Metabolic […]

Continue Reading

You may also like

#SundayBunday Week 1

Welcome to #SundayBunday !!! Sunday is usually the day where I stress eat, binge on tv, and think of ways I can avoid the upcoming Monday – more like Ughday. Since it is summer and Sundays are a little less scary right now I thought I would make it a priority for myself to write more for myself and also give my readers a recap of my week. I’m calling it ‘Sunday Bunday’ because Sundays are the day where my hair is up in a bun. So enough with the introduction… Here’s what went on this week >>>

Continue Reading

You may also like