Rare Disease Day 2021

It’s Rare Disease Day! Today, I’m wearing stripes to acknowledge those living with a rare disease. A disease is a “disorder of structure or function in a human…especially one that produces specific…

What Matters to Me

It’s been a year since Love What Matters reached out and asked to share my story. My thoughts and words from this passage are still the same. However,…

Growth Awareness Day

Did you know today is Growth Awareness day? This year, The Chandler Project partnered with Ascendis Pharma to invite patients and families of children with achondroplasia to share insights, experiences,…

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Strategic Communications Professional with 6+ years in public speaking, social media management, patient advocacy, and event planning. Let's work together!

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