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Achondroplasia Limb Lengthening

Another lengthening?

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Ok so the title may have been a little clickbait – sorry 😂 – TBH Dr. Standard and I did talk about it (I’ll get to that later) You probably already know but I was in Baltimore last week. It’s been a while since I’ve seen Dr. Standard and I’ve

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#SundayBunday Lifestyle

#SundayBunday – Pure Barre

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Hello, September…or should I say Septembarre? 😉 It’s officially been a month and a half since I have started Pure Barre and I am LOVING IT!! Even though it’s only been a little over a month, Pure Barre has been the best thing to happen to me.

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Achondroplasia

Therachon Measuring Study

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Therachon is a pharmaceutical company developing a treatment with the goal of reducing the burden of complications of achondroplasia. In this regard, we are seeking U.S. based patient volunteers to be filmed in a short video intended to train health care professionals working on our clinical trials. The training will focus

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Limb Lengthening

One Decision

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Today’s post is going to be a little different. I’m not going to recap my week but I am going to share a story. 8 years ago today I made a decision that would forever change my life. (Also, let’s ignore the fact that I didn’t post a recap last