about

chandler crews

Patient Engagement & Communications Professional ⎯ I have grown, figuratively and literally, a reputable platform & positive community by sharing every facet of myself. My experience of living with achondroplasia and sharing my personal & physical growth through full transparency turned into a passion for advocacy and social media strategy, which has led to my professional and influential career.

As a key opinion leader in the rare disease and skeletal dysplasia community, I spend my days advocating, public speaking, and building relationships with various patient networks, healthcare industry professionals, and biotech & pharmaceutical companies.

More about my personal & professional achievements can be found on my press page.

limb lengthening

the 411

In August 2010, I underwent my first of three limb-lengthening procedures. I was at my mature adult height of 3’10” (116.84 cm) and, by the end of treatment, stood just over 4’5″ (134.62 cm). Following my first leg lengthening, I lengthened my upper arms (humerus) four inches (10 cm) and, a year later, lengthened my legs a second time, resulting in my final height of 4’11” (149.86 cm).

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