about

Growth, Evolve, Transform – for the past decade, I’ve been metamorphosing through every phase of my life and sharing every fragment and pigment of myself thus creating a kaleidoscope of myself and sharing it with the world. From feeling trapped inside what felt like a mold that I would never be able to break free from was really a chrysalis. And ever since then, I’ve been soaring.

Through advocacy, public speaking, & strategic communication, I spend my days building a solid foundation in order to create better social worlds between advocates and leaders in the rare disease community through positive communication. My other areas of expertise in my professional career include: social media management + content creation, conference & event planning, nonprofit management, fundraising, and more. For more about my advocacy and personal achievements, visit my press page. For all inquires, contact me here or by email to hello@chandlercrews.com.

Now for the fun facts 🤗 Beau Alexander is the center of my world 🐶 my favorite color is purple 💜 when I’m not navigating through the world wide web working, or patiently waiting for Taylor Swift to drop one of her infamous easter eggs, you can find me in a barre or yoga studio 💪🏻 I LOVE strong coffee ☕️ my go to order: tall quad breve latte 🤪 I love rewatching the same shows over and over again – HBO & Netflix Originals + sitcoms & crime dramas are my forever go-to’s 📺 my favorite social media platform depends on the time time of day – when the sun is shining, it’s Instagram 🖼 and by night, I’m endlessly scrolling through Twitter 🐥 My spirit animal is the butterfly, obviously 🦋


When it comes to sharing your life on the internet, one thing you should have is thick skin and strong bones – Chandler Crews has both. Before sharing your day-to-day “influencing” became all the rage, She has been sharing every step (literally) of her life. From the time she was 16 and undergoing limb lengthening, she has shared every moment through the blood, sweat and tears.

In addition to a major online presence, Chandler has over a decade of public speaking to various audiences including – school classrooms, national conferences, international pharmaceutical meetings and workshops, the Food and Drug Administration, and more. She has also been the spotlight of numerous worldwide media outlets.

Today, she is the founder of The Chandler Project, a nonprofit organization that provides those affected with achondroplasia, and other forms of dwarfism and skeletal dysplasia, with the latest in pharmaceutical research and surgical advancements. The Chandler Project believes in advocacy, awareness, support, and hope for all. Since 2019, The Chandler Project has been host of the annual Achondroplasia Research Conference – the only conference in North America that brings together patients, caregivers, researchers, physicians, and biotech/pharmaceutical companies to connect and build a strong and trustworthy community to learn about the latest breakthroughs in achondroplasia research.

4 Comments

  1. Julie
    Jun 5, 2020 / 6:00 pm

    Thank you for making your journey public. Your stories has already made a big impact to my life.

  2. Avi
    Apr 17, 2020 / 7:14 pm

    if height took courage, positive attitude and persistence into account, you’d be one of the tallest people around.

  3. Wil Prisock
    Jul 17, 2019 / 7:35 pm

    Yo, what you did is dope, you look happier and better off for it.

  4. Tomas Elizalde
    Jun 25, 2019 / 3:19 pm

    Well done. You are my new definition of courage. Made my day reading about you

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