For speaking engagements and all media inquiries, email hello@chandlercrews.com or contact here.
WMAR Baltimore – Midday Maryland, June 2021
Chandler Crews was born with achondroplasia, a serious, progressive and lifelong condition that is the most common form of dwarfism. Beyond a short stature, people with achondroplasia can experience serious health complications, including foramen magnum compression, sleep apnea, bowed legs, mid-face hypoplasia, permanent sway of the lower back, spinal stenosis and recurrent ear infections. Some of these complications can result in the need for invasive surgeries, such as spinal cord decompression.
Currently limb lengthening surgery is the only treatment option available. Chandler underwent the surgery at 16 years old, greatly improving function and mobility issues.
The 3rd Annual Achondroplasia Research Conference takes place in Baltimore July 2-3.
Learn more here.
Achondroplasia is about so much more than height. Join Let’s Talk Achondroplasia, a virtual event for caregivers and families, organized by BioMarin. Join me and Dr. Pamela Smith, a pediatric endocrinologist from Phoenix Children’s Hospital who manages children with short stature conditions as we share our experience and questions from the audience. Check back soon for recording.
KGUN – Tucson Morning Blend, June 2021
Achondroplasia is a serious, progressive and lifelong condition that is the most common form of dwarfism. At the age of 16, Chandler Crews made a choice to undergo a number of limb lengthening surgeries that – over the span of four years – has changed her life. She went from standing at 3’10” to 4’11”.
After her experience she founded The Chandler Project, a non-profit organization dedicated to connecting people with Achondroplasia to resources and community.
Chandler talks about how her function and mobility greatly improved, along with her independence. She also talks about The Chandler Project’s 3rd annual Achondroplasia research conference, that will be held in-person and virtually on July 2nd and 3rd.
Everyone is invited, patients, caregivers, researchers and physicians, to come together and learn about the latest research and surgical treatment options.
For more information visit: www.thechandlerproject.org
WTKR – Coast Live, June 2021
Chandler Crews was born with achondroplasia, a serious, progressive, and lifelong condition that is the most common form of dwarfism. In 2010 at the age of 16, she made the choice to undergo a series of limb lengthening surgeries. In a span of just four years, Chandler went from standing at 3’10” to 4’11. She joins us to talk about this treatment and The Chandler Project, a non-profit organization dedicated to connecting people with achondroplasia to resources and community. For more information visit thechandlerproject.org.
Australian researchers are leading a global drug trial aimed at boosting growth in children born with a form of dwarfism. But some people of short stature are scared it will eradicate their community.
We are so grateful to Chandler for joining our #RareDiseaseDay celebration this year! Thank you for sharing your journey with us and continuing the conversation about the need for research and development for those living with achondroplasia. We admire your dedication to advocating for the achondroplasia community and speaking out to help raise awareness and educate others.
WBFF – Fox Baltimore, February 2021
Rare Disease Day is February 28. Dr. Shawn Standard and Chandler Crews discuss rare diseases in an effort to help raise awareness.
Buena Vida (MEGA TV), October 2020
BioMarin Submits New Drug Application to U.S. Food and Drug Administration for Vosoritide to Treat Children with Achondroplasia, August 2020
“This regulatory submission brings our community closer to accessing the first therapeutic choice for children and families,” said Chandler Crews, Founder of The Chandler Project. “A well-researched drug treatment choice has the potential to be an important resource for the community and to increase our understanding of the scientific underpinnings of achondroplasia.”
Love What Matters – What’s it like being a little person?, February 2020
“I was touched without my consent and forced to apologize. I was so naive.’: Woman with Achondroplasia urges ‘I’m not a little person, I’m not a dwarf, I’m just Chandler’”
STAT News – A new treatment promises to make little people taller. Is it an insult to ‘dwarf pride’?, November 2019
“Crews decided she had had enough of having to ask for help, of worrying about whether public restrooms would be accessible, and of struggling with routine feminine hygiene.”
My Not-So-Short Life: Why Limb Lengthening Surgery Was Right for Me, November 2018
“Like many with dwarfism, I surprised my parents when I was born. Only one in 15,000 to one in 40,000 live births result in a person with achondroplasia, the most common form of dwarfism.”
U.S. Food and Drug Administration, May 2018
Chandler Crews speaks at the Open Public Hearing portion of the May 11, 2018 meeting of the Joint Pediatric Advisory Committee and Endocrinologic and Metabolic Drugs Advisory Committee. Source.
Bones That Fit, December 2017
Chandler Crews, born with the most common type of dwarfism, undergoes several procedures to lengthen her bones. This short documentary shows the strength and perseverance of a person who uncontrollably faced obstacles since their childhood and how they rose above through faith in self and science. Produced by Carly Machen.
LP Doc Talk, Episode 8, July 2016
Dr. Shawn Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening answers your questions on limb lengthening for little people in episode 8 of Growing Stronger‘s LP Doc Talk program. Limb lengthening patient, Chandler Crews, also provides her perspective. Click here for more episodes of LP Doc Talk.
Little People of America – LPA Speakers Night, July 2014
Chandler Crews gives a speech titled, Limb Lengthening: Then vs. Now and My Experience at the first annual LPA Speakers Night at the 2014 Little People of America National Conference in San Diego, California.
Some people with dwarfism are turning to a controversial alternative: A surgery that can make them more than a foot taller. NBC 7’s Mark Mullen shares one patient’s journey, including the criticism she has received from her own community.
“Just a year ago, I was six inches shorter.” Doctors at Sinai Hospital have pioneered a limb-lengthening procedure that’s a radical departure from the traditional method.
A Little Rock teenager who underwent a controversial leg lengthening surgery is opening up about her experience.
