BioMarin Submits New Drug Application to U.S. Food and Drug Administration for Vosoritide to Treat Children with Achondroplasia, August 2020
“This regulatory submission brings our community closer to accessing the first therapeutic choice for children and families,” said Chandler Crews, Founder of The Chandler Project. “A well-researched drug treatment choice has the potential to be an important resource for the community and to increase our understanding of the scientific underpinnings of achondroplasia.”
Love What Matters – What’s it like being a little person?, February 2020
“I was touched without my consent and forced to apologize. I was so naive.’: Woman with Achondroplasia urges ‘I’m not a little person, I’m not a dwarf, I’m just Chandler’”
STAT News – A new treatment promises to make little people taller. Is it an insult to ‘dwarf pride’?, November 2019
“Crews decided she had had enough of having to ask for help, of worrying about whether public restrooms would be accessible, and of struggling with routine feminine hygiene.”
My Not-So-Short Life: Why Limb Lengthening Surgery Was Right for Me, November 2018
“Like many with dwarfism, I surprised my parents when I was born. Only one in 15,000 to one in 40,000 live births result in a person with achondroplasia, the most common form of dwarfism.
U.S. Food and Drug Administration, May 2018 – Chandler Crews speaks at the Open Public Hearing portion of the May 11, 2018 meeting of the Joint Pediatric Advisory Committee and Endocrinologic and Metabolic Drugs Advisory Committee. Source.
Bones That Fit, December 2017 – Chandler Crews, born with the most common type of dwarfism, undergoes several procedures to lengthen her bones. This short documentary shows the strength and perseverance of a person who uncontrollably faced obstacles since their childhood and how they rose above through faith in self and science. Produced by Carly Machen.
LP Doc Talk, Episode 8, July 2016 – Dr. Shawn Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening answers your questions on limb lengthening for little people in episode 8 of Growing Stronger‘s LP Doc Talk program. Limb lengthening patient, Chandler Crews, also provides her perspective. Click here for more episodes of LP Doc Talk.
Little People of America, July 2014 – Chandler Crews gives a speech titled, Limb Lengthening: Then vs. Now and My Experience at the first annual LPA Speakers Night at the 2014 Little People of America National Conference in San Diego, California.
NBC San Diego – Limb-Lengthening Surgery Creates Controversy, July 2014
Some people with dwarfism are turning to a controversial alternative: A surgery that can make them more than a foot taller. NBC 7’s Mark Mullen shares one patient’s journey, including the criticism she has received from her own community.
Baltimore Sun – Sinai Hospital doctors pioneer limb-lengthening procedure, May 2014
“Just a year ago, I was six inches shorter.” Doctors at Sinai Hospital have pioneered a limb-lengthening procedure that’s a radical departure from the traditional method.
KATV Little Rock – LR Teenager’s Life-Changing Surgery to Lengthen Her Legs, July 2011
A Little Rock teenager who underwent a controversial leg lengthening surgery is opening up about her experience.