press

2022

• November
  • AllStripes: Feeling More Me (op ed)
    “One of the things I often find hard about living with a visible medical diagnosis is that when people see you, you’re oftentimes put on this pedestal and made to feel like you’re “an inspiration.” In other words, people turn you into a spokesperson for showing that different bodies are beautiful — when all you’re really doing is just living your day-to-day life like everyone else.”
• April
  • BBC: Ellie Simmonds: A World Without Dwarfism? (featured interview)
    • Watch here

• February
  • Four Nine: I Had Limb Lengthening Surgery (interview)

• January
  • Ivanhoe Newswire: Short in Stature, Tall in Courage (interview)
    “It kind of finally clicked at 16. I was like, oh, like, I’m really not growing anymore. This is it.” Crews said. “She decided that she needed a little more to be able to do the things she needed to do,” Philip K. McClure, MD, an orthopedic surgeon at the International Center for Limb Lengthening says of Chandler.

2021

• October
  • Baltimore’s Child Magazine: ‘Growing Up’ in Baltimore (publication)
    “Despite being born and raised in Little Rock, Arkansas, I like to claim Baltimore as the city where I grew up because it is…literally”

• August
  • Future Rare Diseases: Vosoritide treatment accelerates bone growth in children with achondroplasia (co-author; publication)
  • BioMarin Pharmaceutical, Inc.: Let’s Talk Achondroplasia (feature)

• June
  • Talk! With Audrey: Chandler Crews Talks About Her Decision to Have Limb Lengthening Surgery (interview)
  • ACMG Annual Clinics Genetics Meeting: Key Measurement Concepts and Appropriate Clinical Outcome Assessments in Pediatric Achondroplasia Clinical Trials (co-author)
  • WMAR Baltimore, Midday Maryland: The Chandler Project – Achondroplasia (interview)
  • KGUN9, Tuscon Morning Blend: A Life-Changing Limb Lengthening Surgery for Woman Born with Dwarfism (interview)
  • WTKR, Coast Live: A Treatment Option for Those with Achondroplasia (interview)

• April
  • SBS Dateline: Born Small (featured interview)
  • Check Rare: Achondroplasia and Bone Lengthening Surgery (interview)
  • Global Genes: Going to Extreme Lengths (interview)
  • Situation Positive: How Chandler Turned Her Situation Positive (interview)

• February
  • BioMarin Pharmaceutical, Inc.: Rare Disease Day Event (featured guest)
  • WBFF Baltimore: Rare Disease Day, Dr. Shawn Standard and Chandler Crews discuss rare diseases in an effort to help raise awareness (interview)

2020

• October
  • Mega TV, Buena Vida (interview)
• August
  • BioMarin Submits New Drug Application to U.S. Food and Drug Administration for Vosoritide to Treat Children with Achondroplasia (featured, publication)
    “This regulatory submission brings our community closer to accessing the first therapeutic choice for children and families,” said Chandler Crews, Founder of The Chandler Project.  “A well-researched drug treatment choice has the potential to be an important resource for the community and to increase our understanding of the scientific underpinnings of achondroplasia.”

• February
  • Love What Matters: What’s it Like Being a Little Person (op ed)
    “I was touched without my consent and forced to apologize. I was so naive.” Woman with achondroplasia urges “I’m not a little person, I’m not a dwarf, I’m just Chandler.”

2019

• November
  • STAT News: A new treatment promises to make little people taller. Is it an insult to ‘dwarf pride’? (featured, publication)
    “I’ll never have that,” she said. “I’ve always seen my having dwarfism as a medical diagnosis, which is what it is. So when people would tell me, ‘You’re just short’ — well, if that’s the case, then why am I constantly having to go to the doctor to get my ears checked? To examine my spine?”

2018

• November
  • RadioMD: My-Not-So-Short-Life: Why Limb Lengthening Surgery Was Right For Me (op ed)

• May
  • Joint Pediatric Advisory Committee and Endocrinologic and Metabolic Drugs Advisory Committee meeting (speaker)

2017

• December
  • Carly Machen: Bones That Fit (feature)
    Chandler Crews, born with the most common type of dwarfism, undergoes several procedures to lengthen her bones. This short documentary shows the strength and perseverance of a person who uncontrollably faced obstacles since their childhood and how they rose above through faith in self and science. Carly Machen

2016

• Growing Stronger, LP Doc Talk: Limb Lengthening for Dwarfism (interview)
  Dr. Shawn Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening ​answering your questions on limb lengthening for Little People. Special guest and limb lengthening patient, Chandler Crews, also provides her perspective.

2014

• NBC 7 San Diego: Limb-Lengthening Surgery Creates Controversy (interview)
  Some people with dwarfism are turning to a controversial alternative: a surgery that can make them more than foot taller. NBC 7’s Mark Mullen shares one patient’s journey, including the criticism she has received from her own community.
• Little People of America, LPA Speaker’s Night: Limb Lengthening: Then vs. Now + My Story (speaker)
• Baltimore Sun: Sinai Hospital doctors pioneer limb-lengthening procedure (feature)
  “Just a year ago, I was six inches shorter,” Crews said. “I couldn’t sit with my feet on the ground. Can you imagine what that was like?”

2011

• KATV: Little Rock Teenager’s Life-Changing Surgery To Lengthen Her Legs
  “One inch every two weeks is how much I’d grow.”