I have achondroplasia and am one of many living with this condition which is caused by a mutation in the FGFR3 gene. On my platform, I represent myself. I choose how I identify my diagnosis, how I treat my diagnosis. And I choose what…
It’s Supposed to be Fun Turning ’21
Remember last year when we turned ’21? It was supposed to be fun, right? At least, that’s what Taylor thought when she turned 21 *forever internally screaming, “screw you, Jake Gyllenhaal!”* 😫 Don’t get me wrong, 2021 was a fun…
Hope for Achondroplasia
To cure vs. To treat. • To cure is to complete the restoration (get rid of) of health.• To treat is IMPROVE health, but may not include the complete elimination of a disease. What’s coming up for achondroplasia isn’t a…
Dwarfism Awareness Day – 2021
For as long as I can remember, the butterfly has always been my spirit animal 🦋 every year on #DwarfismAwareness day, I like to reflect back on my past lifetime and compare it to the life I live today. Butterflies represent rebirth, transformation, change, hope & life….
