homepage - Chandler Crews

Skip to primary navigation
Skip to main content

ABOUT
Gallery
PRESS
CONTACT

Blogger ･ Patient Advocate ･ Communications & Social Media Savvy

Advocacy
Lifestyle
Travel
Trends

Main Content

hi, I’m chandler

patient advocate, speaker, communications pro & social strategist

more

stay connected

subscribe for the latest posts

@chancrews

･ hello #wintersolstice ❄️ it’s the shorte

･ hello #wintersolstice ❄️ it’s the shortest day of the year & national short girl appreciation day...so do I still get to celebrate since I’m under 5 feet? 😏

in honor of this short day, here’s me with some of my favs 💗 picture 3 includes me with Dr. Standard (middle) who made me the height I am today and his two colleagues that perform limb lengthening as well — my shortness really shows in that one or maybe they’re just tall (they are) 😅 He (Standard) did tell me once that I could go for another few inches if I wanted to...we’ll see 👀

#achondroplasia #dwarfism #dwarfismawareness #skeletaldysplasia #bonedysplasia #limblengthening #itsathing #bonelengthening #patientadvocate #iSTANDcorrected #standardized #shortgirl #shortgirlprobs #shortgirlappreciationday

･ you know elf on the shelf, but do you know Cha

･ you know elf on the shelf, but do you know Chan on the cam? #myelf ~ sharing a little peep from an upcoming project ✨

more #sELFexpression ideas where that came from so stay tuned 🤗 suggestions are welcomed ❤️

#elfontheshelf #elfyourself #elvesofinstagram #expressyoursELF #christmas #christmascheer #christmasspirit #christmastime #happyholidays #holidaycheer #holidayseason #achondroplasia #achondroplasiaawareness #achondroplasiaresearch #dwarfism #skeletaldysplasia #limblengthening #patientadvocate #patientadvocacy

･ introducing @sirbeaualexander 🐶 a very dapp

･ introducing @sirbeaualexander 🐶 a very dapper little dude who reminds me of a potato with sour cream 🥔 when he’s done gnawing on @starbucks sleeves and @spanx leggings, he’ll be rocking bandanas and bow ties 🎀 He has the sweetest little yelp and loves to snuggle right into your neck 🐾 #BeauXander

#beaualexander #beaubeau #potabeau #beautato #beaugram #instabeau #chihuahua #chihuahuasofinstagram #longhairchihuahua #puppiesofinstagram #dogsofinsta #dogsofinstagram #newpuppy #puppy #puppylove #boopmynose

･ NOV-19 > COVID-19 ✨ I miss being surrounded

･ NOV-19 > COVID-19 ✨ I miss being surrounded by loose acquaintances who think I'm funny and smart and charming ~ #27

#november #birthday #scorpio #schittscreek #alexisrose #quarantinebirthday #achondroplasia #dwarfism #skeletaldysplasia #patientadvocate

･ can’t let this month pass without recognizin

･ can’t let this month pass without recognizing some of my favorite people 💙 October is National Physical Therapy Month.

10 years ago, I never could’ve imagined the mark these people would make on my life.

Over the years, I have spent countless hours laughing, crying, being a smart ass here and there (they still like me 😉) and making unforgettable memories.

Dr. Standard was right when he said to me before my first surgery that ‘it’s the physical therapists that deserve the credit. You’re going to have to work with them and build a connection. If you can’t work with them, then this is going to be really hard.’

I’ve always seen them as my biggest advocates and strongest supporters. They show you the meaning of tough love.

I’ve never respected anyone more than those who can call me out on my b.s. and hit me with a harsh reality.

love y’all sooo much 💗 not all are pictured, but know I love each of you just the same 🥰 @pace_doctor, I don’t think we even have a photo together 🥺

#physicaltherapy #physicaltherapymonth #pti_ar #choosept #achondroplasia #dwarfism #dwarfismawareness #dwarfismawarenessmonth #skeletaldysplasia #orthopedics #limblengthening #standardized #iSTANDcorrected

･ I interrupt my peach filtered feed to bring yo

･ I interrupt my peach filtered feed to bring you this unscheduled #dwarfismawareness post.

I don’t mind when my photos are shared. It’s why I’ve been so transparent about my experience for the past 10 years and why I consent to Dr. Standard and other organizations and publications to share my photo(s). That’s not the issue.

The issue is my photo(s) are being used here to spread misinformation about a #medical procedure that not only bettered my life, but also benefits those who are born with congenital conditions such as #CongenitalFemoralDeficiency, #ProximalFemoralFocalDeficiency #FibularHemimelia, etc.

I don’t want to post on their behalf, but I do want to mention that these patients face the same backlash and scrutiny as those with #dwarfism who opt for limb lengthening. When videos like this are made, it makes it even harder for parents and patients to find the necessary resources they need to correct and manage their child’s condition. You will never know what these patients and families go through when consulting with orthopedists - it’s hard and emotions are high. It’s why there are very FEW institutions in the US that perform these procedures —
･ @limblengthmd / @lifebridgehealth
･ @paleyinstitute / @stmarysmc
･ @limblengthening / @hspecialsurgery (just to name a few 🤷🏼‍♀️ NOTE: these are institutions that treat those with congenital conditions in addition to cosmetic lengthening. There are other institutions in the US who primarily perform cosmetic lengthening)

So when you see a video or post like this, keep in mind that it’s never about just height for these patients.

I also want to note that this isn’t a dig to @drkaranrajan. It’s simply a patient reacting to a limb lengthening video and providing her perspective.

#achondroplasia #achondroplasiaawareness #achondroplasiaresearch #dwarfismawarenessmonth #skeletaldysplasia #bonedysplasia #orthopedics #CFD #FH #PFFD #limblengthening #itsathing #iSTANDcorrected #standardized #patient #patientadvocate #patientadvocacy

Copyright © 2021 · Chandler Crews · Hearten Made ⟡

Search

Type + hit enter