I wake and watch you breathing with your eyes closedI sit and watch youI notice everything you do or don't do dessner, a. swift, t. (2020). tolerate it. on evermore. Authors Note: Because of course I reference Taylor Swift whenever I can. In this post, I reflect on how my mother and I have ...
rare disease day • 2022
I have achondroplasia and am one of many living with this condition which is caused by a mutation in the FGFR3 gene. On my platform, I represent myself. I choose how I identify my diagnosis, how I treat my diagnosis. And I choose what my diagnosis means to me and that’s ...
Rare Disease Day 2021
It’s Rare Disease Day! Today, I’m wearing stripes to acknowledge those living with a rare disease. A disease is a “disorder of structure or function in a human...especially one that produces specific signs or symptoms.” Referring to achondroplasia as a “disease” is upsetting to some ...
