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Achondroplasia

Love What Matters

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I had the opportunity to share my story with Love What Matters. Full story below 🙂 “I knew the word ‘achondroplasia’ by the time I was able to talk. At 2 years-old I was able to say, ‘I have achondroplasia,’ even though I probably didn’t fully understand what it meant.

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I shared a similar comparison on my Facebook page recently, but this one is taken at the same event – nine years apart ~ so not quite the infamous decade challenge. In the first image, I’m in a wheelchair and Dr. Standard is kneeling down. The second image, we’re both

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I get asked a lot about who’s my doctor, where did I go for my lengthenings, what was the experience like, and so on…You can check that out by reading my patient story on the International Center for Limb Lengthening website or down below 🙂

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Last week I was in Baltimore (surprise, surprise) for another appointment with Dr. Standard but this time it was more planned than it was scheduled – if that makes sense…it does to me. Recently, I was approached by a filmmaker to be part of an upcoming documentary that will share