It’s Rare Disease Day! Today, I’m wearing stripes to acknowledge those living with a rare disease. A disease is a “disorder of structure or function in a human...especially one that produces specific signs or symptoms.” Referring to achondroplasia as a “disease” is upsetting to some ...
Growth Awareness Day
Did you know today is Growth Awareness day? This year, The Chandler Project partnered with Ascendis Pharma to invite patients and families of children with achondroplasia to share insights, experiences, and knowledge about children’s growth. Help raise awareness and encourage others to seek ...
