Growth Awareness Day
Did you know today is Growth Awareness day? This year, The Chandler Project partnered with Ascendis Pharma to invite patients and families of children with achondroplasia to…
Virtual Achondroplasia Research Conference
Register for the Virtual Achondroplasia Research Conference on Saturday, September 5 at 9 a.m. Eastern Standard Time. The conference agenda is filled with information and…
7 year Leg-iversary
I can’t believe it’s been seven years since my second leg lengthening. 🤩 I still have the monkey, can’t say the same for the glasses though (they’re…
Love What Matters
I had the opportunity to share my story with Love What Matters. Full story below 🙂 “I knew the word ‘achondroplasia’ by the time I…
A Boost of Confidence
I shared a similar comparison on my Facebook page recently, but this one is taken at the same event – nine years apart ~ so…
Fundacíon ALPE Acondroplasia 2018
If you were keeping up with me on social media last week then you probably know that I was in Spain for the sixth International…