In honor of National Doctors Day, I’m sharing an interview Dr. Standard and I did for Growing Stronger‘s LPDocTalk program. We discussed limb lengthening for dwarfism from a surgeon’s input and a patients perspective. Click here for full interview.
One of my very dear friends since kindergarten, Carly Machen, recently graduated with her BA in Media Production at the University of Arkansas at Little Rock. She came to me earlier this year asking to share my story for her senior thesis. She captured it so beautifully.
Finally home from my “home away from home.” It was a successful weekend for the Save-A-Limb Fund! Over $90,000 raised! All proceeds will benefit children who suffer from limb and joint deformities. The funds raised make it possible for Dr. Herzenberg and Dr. Standard to travel to other countries like Haiti and the Dominican Republic and treat patients who
At almost 24 years old I feel younger now than I felt at almost 17.
I was born with achondroplasia. It’s a rare genetic bone disorder, a type of dwarfism that affects the way cartilage becomes bone. I always felt like I wasn’t supposed to be born this way. When I was younger, even up to the age of 16, I always imagined myself as “average height” or “taller” or whatever you want to call it. In my dreams at night I was always average height. From as far back as I can remember, I always felt like I wasn’t born into the right body.
It’s been a little over five years since I lengthened my arms. Even though it’s been my new normal for five years now
I still catch myself going, “huh, I could never really do that before.”
Now I know we all struggle getting into and out of dresses with zippers in the back –