Save-A-Limb 2017

Finally home from my “home away from home.” It was a successful weekend for the Save-A-Limb Fund! Over $90,000 raised! All proceeds will benefit children who suffer from limb and joint deformities. The funds raised make it possible for Dr. Herzenberg and Dr. Standard to travel to other countries like Haiti and the Dominican Republic and treat patients who

Continue Reading

You may also like

Younger Now

Feels like I just woke up. like all this time I’ve been asleep. even though it’s not who I am. I’m not afraid of who I used to be.” 💕

At almost 24 years old I feel younger now than I felt at almost 17.

I was born with achondroplasia. It’s a rare genetic bone disorder, a type of dwarfism that affects the way cartilage becomes bone. I always felt like I wasn’t supposed to be born this way. When I was younger, even up to the age of 16, I always imagined myself as “average height” or “taller” or whatever you want to call it. In my dreams at night I was always average height. From as far back as I can remember, I always felt like I wasn’t born into the right body.

Continue Reading

You may also like

Getting Dressed without the Stress

It’s been a little over five years since I lengthened my arms. Even though it’s been my new normal for five years now

I still catch myself going, “huh, I could never really do that before.”

Now I know we all struggle getting into and out of dresses with zippers in the back –

Continue Reading

You may also like