If you were keeping up with me on social media last week then you probably know that I was in Spain for the sixth International Congress on Achondroplasia and other Bone Dysplasias. This three-day event is put on every four years by Fundacíon ALPE Acondroplasia. ALPE is such a wonderful organization that provides information, gives support, sponsors medical advice and creates bonds for families and children with achondroplasia and other forms of rare bone dysplasias. I had the honor of meeting Estefánia and Susana earlier this year while in Maryland for the Joint Pediatric Advisory Committee and Endocrinologic and Metabolic […]
Ok so the title may have been a little clickbait – sorry 😂 – TBH Dr. Standard and I did talk about it (I’ll get to that later) You probably already know but I was in Baltimore last week. It’s been a while since I’ve seen Dr. Standard and I’ve had a few things that I have been wanting to discuss with him in person – it was also Save-A-Limb weekend. The appointment went great. One of my main reasons for this appointment was because I turn 25 in a couple of months which means I only have one […]
Today’s post is going to be a little different. I’m not going to recap my week but I am going to share a story. 8 years ago today I made a decision that would forever change my life. (Also, let’s ignore the fact that I didn’t post a recap last week 😂 These last couple of weeks I’ve been finishing up my summer classes and have had other things keeping me way busy.) But hopefully, this post makes up for it 🙂 I remember it so vividly. To start, my family and I had just spent a long weekend up […]
In honor of National Doctors Day, I’m sharing an interview Dr. Standard and I did for Growing Stronger‘s LPDocTalk program. We discussed limb lengthening for dwarfism from a surgeon’s input and a patients perspective. Click here for full interview.
Let the rain fall down and wake my dreams of owning a pair of Hunter boots! With bowed legs wearing boots is almost impossible. Being able to wear boots was one of the things I was looking the most
One of my very dear friends since kindergarten, Carly Machen, recently graduated with her BA in Media Production at the University of Arkansas at Little Rock. She came to me earlier this year asking to share my story for her senior thesis. She captured it so beautifully.
Finally home from my “home away from home.” It was a successful weekend for the Save-A-Limb Fund! Over $90,000 raised! All proceeds will benefit children who suffer from limb and joint deformities. The funds raised make it possible for Dr. Herzenberg and Dr. Standard to travel to other countries like Haiti and the Dominican Republic and treat patients who