Press
2024
- Inaugural Little Legs Big Heart Conference: MyAchonJourney (Presenter)
- Inaugural LLBH Conference: Let’s Talk Limb Lengthening (Panelist)
- Inaugural LLBH Conference: Current Therapies and Research for Achondroplasia and Other Skeletal Dysplasias (Moderator)
- BridgeBio Announces Durable Month 12 and 18 Phase 2 Cohort 5 Results of Oral Infigratinib in Achondroplasia, and First Participant Consented in ACCEL for Hypochondroplasia
- Global Genes Rare Drug Development Symposium: Unlocking Insights Together: The Power of Data Collaboration – RARE-X Exchange
- SEEN TV: Surgery Made Me 1 Foot Taller
2023
- Picnic Health: How to Advocate for Your Child with Achondroplasia in a Medical Setting
- Global Genes Rare Advocacy Summit: Using Data Collection to Improve Outcomes
2022
- BBC: Ellie Simmonds: A World Without Dwarfism?
- Four Nine: I Had Limb Lengthening Surgery
- Ivanhoe Newswire: Short in Stature, Tall in Courage
2021
- Baltimore’s CHILD: ‘Growing Up’ in Baltimore
- Future Medicine: Vosoritide treatment accelerates bone growth in children with achondroplasia
- BioMarin Pharmaceutical: Let’s Talk Achondroplasia
- Talk! with Audrey: Chandler Crews Talks with me About Her Decision to Have Limb Lengthening
- Key Measurement Concepts and Appropriate Clinical Outcome Assessments in Pediatric Achondroplasia Clinical Trials
- WMAR Baltimore Midday Maryland: The Chandler Project – Achondroplasia
- KGUN9 Tuscon Morning Blend: A life-changing limb lengthening surgery for women born with Dwarfism
- 3WTKR Coast Live: A treatment option for those with achondroplasia
- SBS Dateline: Born Small
- Check Rare: Achondroplasia and Bone Lengthening Surgery
- Global Genes, RARECast: Going to Extreme Lengths
- Situation Positive: How Chandler Turned Her Situation Positive
- BioMarin Pharmaceutical: Rare Disease Day Celebration
- FOX 45 News: Rare Disease Day with Dr. Shawn Standard and Chandler Crews
2020
- MEGA TV: Buena Vida
- BioMarin Pharmaceutical: BioMarin Submits New Drug Application to U.S. FDA for Vosoritide to Treat Children with Achondroplasia
- Love What Matters: ‘What is it like being a little person?’ I was touched without my consent
2019
2017
- Bones That Fit, directed by Carly Machen
2016
- Growing Stronger: Achonversation with Dr. Shawn Standard
- 11th Annual Save-A-Limb Fundraiser Banquet: Mission Trip to the Dominican Republic
- Sinai Hospital: Limb Lengthening Surgery – The Patient and Parent Perspective
2014
- 9th Annual Save-A-Limb Fundraiser Banquet: My Patient Experience
- NBC 7 San Diego: Limb-Lengthening Surgery Creates Controversy
- Little People of America National Conference: Limb Lengthening: Then vs. Now + My Story
- Baltimore Sun: Sinai Hospital doctors pioneer limb-lengthening procedure
2011
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