Global Genes Rare Advocacy Summit
📷 Featured image: Global Genes Week in Rare, hosted by Global Genes, has easily become one of my favorite weeks, and I look forward to…
Wind in My Hair, I Was There
5, 6, 7, 8…I have *bean* waiting to *reflect* on this past weekend & now that I’m literally in the ☁️ clouds ☁️ and not…
3rd Annual Achondroplasia Research Conference
Last weekend, The Chandler Project hosted its 3rd Annual Achondroplasia Research Conference. With a sigh of relief, I can say, it was a success with…