Week in Rare, hosted by Global Genes, has easily become one of my favorite weeks I look forward to each year. This year, I was on a panel with Nasha Fitter, co-founder and CEO of FOXG1Research, and Luke Rosen, founder…
wind in my hair, I was there
5, 6, 7, 8…I have *bean* waiting to *reflect* on this past weekend & now that I’m literally in the ☁️ clouds ☁️ and not in front of one, I can – since 2019, the @chandlerproject has been hosting the annual @achondroplasiaresearch conference &…