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SBS Dateline: Born Small
Achondroplasia · Limb Lengthening · News

SBS Dateline: Born Small

I had the honor of being part of this project by the Special Broadcasting Service (SBS), Australia’s most diverse broadcaster, that focuses on the trial…

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Never Change, but Never Stay the Same
Achondroplasia · Limb Lengthening

Never Change, but Never Stay the Same

It’s been 227 days since I celebrated my 10-year leg-iversary and since I quoted Taylor Swift then, I may as well keep the theme going and quote…

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What Matters to Me
Achondroplasia · Advocacy

What Matters to Me

It’s been a year since Love What Matters reached out and asked to share my story. My thoughts and words from this passage are still…

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Virtual Achondroplasia Research Conference
Achondroplasia · Limb Lengthening

Virtual Achondroplasia Research Conference

Register for the Virtual Achondroplasia Research Conference on Saturday, September 5 at 9 a.m. Eastern Standard Time. The conference agenda is filled with information and…

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7 year Leg-iversary
Limb Lengthening

7 year Leg-iversary

I can’t believe it’s been seven years since my second leg lengthening. 🤩 I still have the monkey, can’t say the same for the glasses though (they’re…

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Love What Matters
Achondroplasia

Love What Matters

I had the opportunity to share my story with Love What Matters. Full story below 🙂 “I knew the word ‘achondroplasia’ by the time I…

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