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Limb Lengthening

7 year Leg-iversary

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I can’t believe it’s been seven years since my second leg lengthening. 🤩 I still have the monkey, can’t say the same for the glasses though (they’re around somewhere) and the legs are longer. So I guess happy 7 year LEG-iversary to my third? pair of legs 🥳 Dr. Standard told once me

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Achondroplasia

Love What Matters

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I had the opportunity to share my story with Love What Matters. Full story below 🙂 “I knew the word ‘achondroplasia’ by the time I was able to talk. At 2 years-old I was able to say, ‘I have achondroplasia,’ even though I probably didn’t fully understand what it meant.

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I shared a similar comparison on my Facebook page recently, but this one is taken at the same event – nine years apart ~ so not quite the infamous decade challenge. In the first image, I’m in a wheelchair and Dr. Standard is kneeling down. The second image, we’re both

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Last week I was in Baltimore (surprise, surprise) for another appointment with Dr. Standard but this time it was more planned than it was scheduled – if that makes sense…it does to me. Recently, I was approached by a filmmaker to be part of an upcoming documentary that will share