limb lengthening

Virtual Achondroplasia Research Conference

Aug 9, 2020

May 8, 2020

I can't believe it's been seven years since my second leg lengthening. 🤩 I still have the monkey, can't say the same for …

Feb 21, 2020

I had the opportunity to share my story with Love What Matters. Full story below :) “I knew the word ‘achondroplasia’ …

Dec 18, 2019

I shared a similar comparison on my Facebook page recently, but this one is taken at the same event – nine years apart ~ …

Jan 21, 2019

Last week I was in Baltimore (surprise, surprise) for another appointment with Dr. Standard but this time it was more …

Oct 18, 2018

If you were keeping up with me on social media last week then you probably know that I was in Spain for the sixth …