A few months ago, I spent a beautiful day out in the Bay Area with Ellie Simmonds, a Paralympic five time gold medallist. For hours, we chatted about our lives and shared stories over coffee and tea. If you’re in…
Dwarfism Awareness Day – 2021
For as long as I can remember, the butterfly has always been my spirit animal 🦋 every year on #DwarfismAwareness day, I like to reflect back on my past lifetime and compare it to the life I live today. Butterflies represent rebirth, transformation, change, hope & life….
11 Years Later
3rd Annual Achondroplasia Research Conference
Last weekend, The Chandler Project hosted its 3rd Annual Achondroplasia Research Conference. With a sigh of relief, I can say, it was a success with over 100 attendees from 21 countries! Although it was offered worldwide, thanks to technology, it…
Born Small
I had the honor of being part of this project by the Special Broadcasting Service (SBS), Australia’s most diverse broadcaster, that focuses on the trial for vosoritide, a therapeutic treatment that will soon be available to those affected by achondroplasia….
Never Change, but Never Stay the Same
It’s been 227 days since I celebrated my 10-year leg-iversary and since I quoted Taylor Swift then, I may as well keep the theme going and quote her today – also, I’m stoked af for the drop of Fearless (Taylor’s Version) tonight…
What Matters to Me
It’s been a year since Love What Matters reached out and asked to share my story. My thoughts and words from this passage are still the same. However, looking back, there’s more I wish I would’ve included. I talk a…
Virtual Achondroplasia Research Conference
Register for the Virtual Achondroplasia Research Conference on Saturday, September 5 at 9 a.m. Eastern Standard Time. The conference agenda is filled with information and resources on the latest research and development surrounding achondroplasia, including surgical treatment options. Attendees will…
7 year Leg-iversary
I can’t believe it’s been seven years since my second leg lengthening. 🤩 I still have the monkey, can’t say the same for the glasses though (they’re around somewhere) and the legs are longer. So I guess happy 7 year LEG-iversary to…
Love What Matters
I had the opportunity to share my story with Love What Matters. Full story below 🙂 “I knew the word ‘achondroplasia’ by the time I was able to talk. At 2 years-old I was able to say, ‘I have achondroplasia,’…
A Boost of Confidence
I shared a similar comparison on my Facebook page recently, but this one is taken at the same event – nine years apart ~ so not quite the infamous decade challenge. In the first image, I’m in a wheelchair and…
Lights, Camera, Action
Last week I was in Baltimore (surprise, surprise) for another appointment with Dr. Standard but this time it was more planned than it was scheduled – if that makes sense…it does to me. Recently, I was approached by a filmmaker…
