I wake and watch you breathing with your eyes closedI sit and watch youI notice everything you do or don't do dessner, a. swift, t. (2020). tolerate it. on evermore. Authors Note: Because of course I reference Taylor Swift whenever I can. In this post, I reflect on how my mother and I have ...
ellie simmonds: a world without dwarfism
A few months ago, I spent a beautiful day out in the Bay Area with Ellie Simmonds, a Paralympic five time gold medallist. For hours, we chatted about our lives and shared stories over coffee and tea. If you're in the UK, you will get to hear this conversation and more on Tuesday, April 5 at 9 PM ...
hope for achondroplasia 🕊️
To cure vs. To treat. • To cure is to complete the restoration (get rid of) of health.• To treat is IMPROVE health, but may not include the complete elimination of a disease. What's coming up for achondroplasia isn't a cure nor is it genocide. It's hope. Parents and caregivers are making ...
achondroplasia research conference | 2021
Last weekend, The Chandler Project hosted its 3rd Annual Achondroplasia Research Conference. With a sigh of relief, I can say, it was a success with over 100 attendees from 21 countries! Although it was offered worldwide, thanks to technology, it is the ONLY event for those in North America to ...
