3rd Annual Achondroplasia Research Conference

Last weekend, The Chandler Project hosted its 3rd Annual Achondroplasia Research Conference. With a sigh of relief, I can say, it was a success with over 100 attendees from 21 countries!

Although it was offered worldwide, thanks to technology, it is the ONLY event for those in North America to learn about new research and developments, both pharmaceutical and surgical, in the treatment of achondroplasia, and soon other forms of dwarfism and skeletal dysplasia, in a safe environment without any fear of conflict or controversy.

Spreading awareness of this important and time sensitive information empowers this community of families to make informed personal decisions. One of the things I loved most about the in-person experience this year was giving parents a chance to interact casually with those who are working every day to give their children treatment options. Thank you so much to:

Full transparency, I was so worried when I made the decision for this to be a hybrid event given the circumstances, but the feedback I’ve received already has been the best motivation to start planning the next one. So for now, stay tuned…

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