• what's a girl gonna do? a diamond's gotta shin

• what's a girl gonna do? a diamond's gotta shine ✨ turning 29 is reminding yourself that while you still may be living through the bridge of "you're on your own, kid" ...you've got diamonds in your eyes, polish up real nice, and can still make the whole place shimmer 🤗 #bejeweled

• it's me, hi, I'm the problem it's me …and ha

• it's me, hi, I'm the problem it's me …and have been ever since 1993 ✨ #tbt

[ actually the real problem is the #FGFR3 mutation but that’s for another post ] #throwbackthursday #achondroplasia #dwarfism #skeletaldysplasia #november #birthdaymonth #birthdayweek #scorpioseason #antihero #CHANtiHero /// obnoxiously tagging Taylor and Jack for obvious reasons

• saving daylight may have come to an end, but s

• saving daylight may have come to an end, but saving limbs never will 🤗 through rain AND shine, every day is a great day to #makeadifference for the kids 💚 especially if it involves 10k steps before noon and seeing the prairie dogs & otters at the @marylandzoo 🦦

#RFOK22 #lifebridgehealth #pediatrics #orthopedics #savealimb #baltimore #marylandzoo #allforanimals #achondroplasia #dwarfism #dwarfismawareness #skeletaldysplasia #limblengthening #standardized #iSTANDcorrected #patientadvocate #patientadvocacy

• it’s wear @greenday…I mean, it’s “wear

• it’s wear @greenday…I mean, it’s “wear green day“ 💚 today is #dwarfismawareness day and you’re supposed to wear green for awareness. if you’ve been following me for awhile, I think it’s safe to say you’re aware 🤗 (also, I hardly own anything green – I literally have more Green Day branded articles of clothing than actual green articles)

I share so much about my diagnosis on other days of the year that I’m sure most of you would be like, “I knew that already” (even I get annoyed with myself) and, it’s important for me to NOT always be constantly posting about #achondroplasia because it’s not the only thing there is about me and it’s not what I want to be known for (for some reason that’s so cringe to say lol) but living with and dealing with achondroplasia is just that – every day is a day of living and learning with how to deal (jUsT LiKe EvErYoNe eLsE iN tHe wOrLd…just differently 🥴

while living, learning, & dealing with #dwarfism – I’m also taking an excessive amount of pictures of beau, listening to Green Day when I’m not listening to @taylorswift + vice versa, in pure barre or core power, watching Y2K sitcoms or crime dramas, probably exceeding the FDAs recommended consumption of @dietcoke and texting my parents “what’s…?” or “how do I…?” 😜

of course there’s more to me than just those things, but my advice (especially to those of you who may know me as the only person you know with dwarfism) is to always be cautious and aware that there’s always more to a person than their diagnosis – ask questions if you’re curious about something, but also know that not everyone wants to always talk about their diagnosis and if they say that, that’s okay! don’t take it to heart 💔

for what it’s worth, if it’s me you’re talking to, starting a conversation about Taylor Swift or Beau or recipes for chocolate chip cookies or brownies is MUCH more preferred than striking up a discussion about my diagnosis 🤎

that’s all I really have the energy for today and that’s enough 🥰 because at the end of the day, we’re all human 💕

#dwarfismawarenessday #dwarfismawarenessmonth #dam2022

• this week…no, the entire month so far has be

• this week…no, the entire month so far has been anything but delightful 🥲 however, I’m trying to remain ✨ a constant fucking delight ✨

…at least that is until tonight @ midnight sharp – then who knows what I’ll be…anti-hero?? vigilante shit??? either way, I’ve been dealing with some real shit lately (a lot of mayhem if you will) but dealing with it during a new @taylorswift era makes it easier to tolerate (at least I hope) 🖤 #TSmidnighTS

• highlight of the week ✨ if you aren’t havi

• highlight of the week ✨ if you aren’t having gelato with Marlowe, you aren’t doing it right 🍧 it was such a treat meeting this sweet girl and her dad this week 💕

#achondroplasia #achondroplasiaawareness #achondroplasiaisbeautiful #dwarfism #dwarfismawareness #dwarfismawarenessmonth #DAM2022 #skeletaldysplasia #patientadvocacy #patientadvocate

• it’s #october3rd which means, it’s #MeansG

• it’s #october3rd which means, it’s #MeansGirlsDay 💖

it’s also #dwarfismawareness month – so, with it being 10/3 and since I was originally 3’10” AND since I’m a pop culture junkie…I couldn’t miss out on this opportunity to make this post…obvi 💁🏼‍♀️

most adults with #dwarfism have an adult height of 4’10” and because there are over 300 different types of dwarfism, adult heights can vary by type, etc. at 16, I was at my adult height of 3’10” which is actually pretty small for someone (adult) with #achondroplasia (ACH) – growing up, I was always at the bottom of the ACH growth chart 📈

going through #limblengthening resulted in my adult height being 4’11” – just ONE inch more than the average adult height for someone with dwarfism. however, despite the one-inch difference, limb lengthening is still frowned upon within the community which is unfortunate 🥲

truly, “I wish I could bake a cake 🍰 filled with rainbows 🌈 and smiles ☺️ and everyone would eat 😋 and be happy 🤗” no matter the choices we make on how to live with our conditions – we all still have dwarfism, and that’s a fact 💚

#meangirls #octoberthird #DAM #DAM2022 #achondroplasiaawareness #patientadvocate #patientadvocacy #leglengthening #popculture #2000snostalgia #Y2K #y2kfashion #millennials

• dumptember 🚛 aka september photo dump 🎞️ september ’22, I’ll remember you ~

the month started by recovering (still am) from the announcement of #TS10 aka #TSmidnighTS and @taylorswift making me go bankrupt 🥲 (got that lavender vinyl as if my life depended on it 💜) and currently gatekeeping #vigilanteshit as my track, but we’ll see come 10/21 🌌

@notacorgijustachi got to experience the west coast with me as I headed to my first @globalgenes patient advocacy summit where I was nominated for the rare champion in advocacy (individual) award alongside 56 other nominees! the best part was seeing familiar faces and meeting internet friends in person 💞 FYI – “don’t befriend strangers on the internet” doesn’t apply to patient advocates 😝 I’m looking so forward to next year + other events and learning more about how to be a better advocate and organization 🦋 if you’re a patient advocate or a nonprofit, check out Global Genes if you haven’t already! 🧬

my time at #GGSummit22 was cut short due to an appointment I had. for the first time in a long time, I’m dealing with something completely unrelated to orthopedics – it actually threw me off that it wasn’t Dr. Standard walking through the door at the appointment 😅 and although I wish I could’ve stayed for the remainder of the summit, it reminded me that at the end of the day, taking care of yourself and health comes before patient advocacy 💜 and for those interested, I’m planning for a more detailed post about my overall experience at the summit – just need a min to get my ish together 🤗

finally – sweatshirts, leggings, and @ugg season is back 🍂 I got two new pairs of boots for this season that I’ll have to share because #lifeafterlengthening just hits differently in the fall and winter seasons…IYKYK 😉👢

will be sharing more all month long with it being #dwarfismawareness month, #midnightsmayhem, and so on – but for now…IT’S FINALLY FALL, Y’ALL! 🎃👻🌙☕️🤎☔️

#achondroplasia #dwarfism #skeletaldysplasia #limblengthening #patientadvocate #patientadvocacy #DAM2022 #DAM22 #travel #globalgenes #bekind #health #takecare #sweaterweather #spookyseason #feelslikeugg #uggseason #boots #taylornation #october

• spent the weekend doing end of summer cleaning

• spent the weekend doing end of summer cleaning + organizing – still have much to do, but was able to still find the time yesterday to get out with beau. while out, we ran into some pretty friends 🦋🐝🌸 (honestly, beau didn’t care at all) but it was nice to take a minute and just watch them explore and soak in the beautiful sunday summer evening while thinking about all that there is to come in september and fall in terms of adventures, health, work and so on 🧡

i’m beyond ready for august to slip away into a moment in time to start fresh in september…that was, of course, all before @taylorswift went and chaotically announced midnights 🕰

either way – no matter the chaos we live in, here’s your reminder to take time and go on a walk, blast taylor swift, and to stop and just watch the butterflies & bees care for this pretty place 🌎

#endofsummer #summerevening #summer #sunday #goldenhour #august #butterfly #butterflies #monarchbutterfly #nature #garden #flowers #baltimore #maryland #prettyplaces

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Aug 5, 2021

11 Years Later

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Filed Under: Achondroplasia, Limb Lengthening Tagged With: achondroplasia, baltimore, biomarin, limb lengthening, shawn standard, surgery

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3rd Annual Achondroplasia Research Conference

hi, I’m chandler!

consumer of too much diet soda / human to beau / *tap my face to get to know me more*

follow me on instagram

• what's a girl gonna do? a diamond's gotta shin

• what's a girl gonna do? a diamond's gotta shine ✨ turning 29 is reminding yourself that while you still may be living through the bridge of "you're on your own, kid" ...you've got diamonds in your eyes, polish up real nice, and can still make the whole place shimmer 🤗 #bejeweled

• it's me, hi, I'm the problem it's me …and ha

• it's me, hi, I'm the problem it's me …and have been ever since 1993 ✨ #tbt

[ actually the real problem is the #FGFR3 mutation but that’s for another post ] #throwbackthursday #achondroplasia #dwarfism #skeletaldysplasia #november #birthdaymonth #birthdayweek #scorpioseason #antihero #CHANtiHero /// obnoxiously tagging Taylor and Jack for obvious reasons

• saving daylight may have come to an end, but s

• saving daylight may have come to an end, but saving limbs never will 🤗 through rain AND shine, every day is a great day to #makeadifference for the kids 💚 especially if it involves 10k steps before noon and seeing the prairie dogs & otters at the @marylandzoo 🦦

#RFOK22 #lifebridgehealth #pediatrics #orthopedics #savealimb #baltimore #marylandzoo #allforanimals #achondroplasia #dwarfism #dwarfismawareness #skeletaldysplasia #limblengthening #standardized #iSTANDcorrected #patientadvocate #patientadvocacy

• it’s wear @greenday…I mean, it’s “wear

• it’s wear @greenday…I mean, it’s “wear green day“ 💚 today is #dwarfismawareness day and you’re supposed to wear green for awareness. if you’ve been following me for awhile, I think it’s safe to say you’re aware 🤗 (also, I hardly own anything green – I literally have more Green Day branded articles of clothing than actual green articles)

I share so much about my diagnosis on other days of the year that I’m sure most of you would be like, “I knew that already” (even I get annoyed with myself) and, it’s important for me to NOT always be constantly posting about #achondroplasia because it’s not the only thing there is about me and it’s not what I want to be known for (for some reason that’s so cringe to say lol) but living with and dealing with achondroplasia is just that – every day is a day of living and learning with how to deal (jUsT LiKe EvErYoNe eLsE iN tHe wOrLd…just differently 🥴

while living, learning, & dealing with #dwarfism – I’m also taking an excessive amount of pictures of beau, listening to Green Day when I’m not listening to @taylorswift + vice versa, in pure barre or core power, watching Y2K sitcoms or crime dramas, probably exceeding the FDAs recommended consumption of @dietcoke and texting my parents “what’s…?” or “how do I…?” 😜

of course there’s more to me than just those things, but my advice (especially to those of you who may know me as the only person you know with dwarfism) is to always be cautious and aware that there’s always more to a person than their diagnosis – ask questions if you’re curious about something, but also know that not everyone wants to always talk about their diagnosis and if they say that, that’s okay! don’t take it to heart 💔

for what it’s worth, if it’s me you’re talking to, starting a conversation about Taylor Swift or Beau or recipes for chocolate chip cookies or brownies is MUCH more preferred than striking up a discussion about my diagnosis 🤎

that’s all I really have the energy for today and that’s enough 🥰 because at the end of the day, we’re all human 💕

#dwarfismawarenessday #dwarfismawarenessmonth #dam2022

• this week…no, the entire month so far has be

• this week…no, the entire month so far has been anything but delightful 🥲 however, I’m trying to remain ✨ a constant fucking delight ✨

…at least that is until tonight @ midnight sharp – then who knows what I’ll be…anti-hero?? vigilante shit??? either way, I’ve been dealing with some real shit lately (a lot of mayhem if you will) but dealing with it during a new @taylorswift era makes it easier to tolerate (at least I hope) 🖤 #TSmidnighTS

• highlight of the week ✨ if you aren’t havi

• highlight of the week ✨ if you aren’t having gelato with Marlowe, you aren’t doing it right 🍧 it was such a treat meeting this sweet girl and her dad this week 💕

#achondroplasia #achondroplasiaawareness #achondroplasiaisbeautiful #dwarfism #dwarfismawareness #dwarfismawarenessmonth #DAM2022 #skeletaldysplasia #patientadvocacy #patientadvocate

• it’s #october3rd which means, it’s #MeansG

• it’s #october3rd which means, it’s #MeansGirlsDay 💖

it’s also #dwarfismawareness month – so, with it being 10/3 and since I was originally 3’10” AND since I’m a pop culture junkie…I couldn’t miss out on this opportunity to make this post…obvi 💁🏼‍♀️

most adults with #dwarfism have an adult height of 4’10” and because there are over 300 different types of dwarfism, adult heights can vary by type, etc. at 16, I was at my adult height of 3’10” which is actually pretty small for someone (adult) with #achondroplasia (ACH) – growing up, I was always at the bottom of the ACH growth chart 📈

going through #limblengthening resulted in my adult height being 4’11” – just ONE inch more than the average adult height for someone with dwarfism. however, despite the one-inch difference, limb lengthening is still frowned upon within the community which is unfortunate 🥲

truly, “I wish I could bake a cake 🍰 filled with rainbows 🌈 and smiles ☺️ and everyone would eat 😋 and be happy 🤗” no matter the choices we make on how to live with our conditions – we all still have dwarfism, and that’s a fact 💚

#meangirls #octoberthird #DAM #DAM2022 #achondroplasiaawareness #patientadvocate #patientadvocacy #leglengthening #popculture #2000snostalgia #Y2K #y2kfashion #millennials

• dumptember 🚛 aka september photo dump 🎞️ september ’22, I’ll remember you ~

the month started by recovering (still am) from the announcement of #TS10 aka #TSmidnighTS and @taylorswift making me go bankrupt 🥲 (got that lavender vinyl as if my life depended on it 💜) and currently gatekeeping #vigilanteshit as my track, but we’ll see come 10/21 🌌

@notacorgijustachi got to experience the west coast with me as I headed to my first @globalgenes patient advocacy summit where I was nominated for the rare champion in advocacy (individual) award alongside 56 other nominees! the best part was seeing familiar faces and meeting internet friends in person 💞 FYI – “don’t befriend strangers on the internet” doesn’t apply to patient advocates 😝 I’m looking so forward to next year + other events and learning more about how to be a better advocate and organization 🦋 if you’re a patient advocate or a nonprofit, check out Global Genes if you haven’t already! 🧬

my time at #GGSummit22 was cut short due to an appointment I had. for the first time in a long time, I’m dealing with something completely unrelated to orthopedics – it actually threw me off that it wasn’t Dr. Standard walking through the door at the appointment 😅 and although I wish I could’ve stayed for the remainder of the summit, it reminded me that at the end of the day, taking care of yourself and health comes before patient advocacy 💜 and for those interested, I’m planning for a more detailed post about my overall experience at the summit – just need a min to get my ish together 🤗

finally – sweatshirts, leggings, and @ugg season is back 🍂 I got two new pairs of boots for this season that I’ll have to share because #lifeafterlengthening just hits differently in the fall and winter seasons…IYKYK 😉👢

will be sharing more all month long with it being #dwarfismawareness month, #midnightsmayhem, and so on – but for now…IT’S FINALLY FALL, Y’ALL! 🎃👻🌙☕️🤎☔️

#achondroplasia #dwarfism #skeletaldysplasia #limblengthening #patientadvocate #patientadvocacy #DAM2022 #DAM22 #travel #globalgenes #bekind #health #takecare #sweaterweather #spookyseason #feelslikeugg #uggseason #boots #taylornation #october

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