A few months ago, I spent a beautiful day out in the Bay Area with Ellie Simmonds, a Paralympic five time gold medallist. For hours, we chatted about our lives…
I have achondroplasia and am one of many living with this condition which is caused by a mutation in the FGFR3 gene. On my platform, I represent myself. I choose how I identify my…
Remember last year when we turned ’21? It was supposed to be fun, right? At least, that’s what Taylor thought when she turned 21 *forever internally screaming, “screw you, Jake…
To cure vs. To treat. • To cure is to complete the restoration (get rid of) of health.• To treat is IMPROVE health, but may not include the complete elimination…
For as long as I can remember, the butterfly has always been my spirit animal 🦋 every year on #DwarfismAwareness day, I like to reflect back on my past lifetime and compare it to the life…
Last weekend, The Chandler Project hosted its 3rd Annual Achondroplasia Research Conference. With a sigh of relief, I can say, it was a success with over 100 attendees from 21…
