I had the honor of being part of this project by the Special Broadcasting Service (SBS), Australia’s most diverse broadcaster, that focuses on the trial for vosoritide, a therapeutic treatment…
It’s been 227 days since I celebrated my 10-year leg-iversary and since I quoted Taylor Swift then, I may as well keep the theme going and quote her today – also, I’m…
It’s Rare Disease Day! Today, I’m wearing stripes to acknowledge those living with a rare disease. A disease is a “disorder of structure or function in a human…especially one that produces specific signs or…
It’s been a year since Love What Matters reached out and asked to share my story. My thoughts and words from this passage are still the same. However, looking back,…
Did you know today is Growth Awareness day? This year, The Chandler Project partnered with Ascendis Pharma to invite patients and families of children with achondroplasia to share insights, experiences, and knowledge…
