Rare Disease Day • 2022
I have achondroplasia and am one of many living with this condition which is caused by a mutation in the FGFR3 gene. On my platform, I represent myself. I…
It’s Supposed to be Fun Turning ’21
Remember last year when we turned ’21? It was supposed to be fun, right? At least, that’s what Taylor thought when she turned 21 *forever…
Hope For Achondroplasia 🕊️
To cure vs. To treat. • To cure is to complete the restoration (get rid of) of health.• To treat is IMPROVE health, but may…
Dwarfism Awareness Day • 2021
For as long as I can remember, the butterfly has always been my spirit animal 🦋 every year on #DwarfismAwareness day, I like to reflect back on my past lifetime and…
3rd Annual Achondroplasia Research Conference
Last weekend, The Chandler Project hosted its 3rd Annual Achondroplasia Research Conference. With a sigh of relief, I can say, it was a success with…